About the Authors

Daisy Rymen

Contributed equally to this work with: Daisy Rymen, Romain Peanne

Affiliations Center for Human Genetics, University of Leuven, Leuven, Belgium, Center for Metabolic Diseases, University Hospital Gasthuisberg, Leuven, Belgium

Romain Peanne

Contributed equally to this work with: Daisy Rymen, Romain Peanne

Affiliation Center for Human Genetics, University of Leuven, Leuven, Belgium

María B. Millón

Affiliation Centro de Estudio Metabalopatías Congénitas, Faculdad de Ciencias Médicas, Universidad Nacional de Córdoba, Hospital de Niños de la Santísima Trinidad, Córdoba, Argentina

Valérie Race

Affiliation Center for Human Genetics, University of Leuven, Leuven, Belgium

Luisa Sturiale

Affiliation Institute of Chemistry and Technology of Polymers, CNR, Catania, Italy

Domenico Garozzo

Affiliation Institute of Chemistry and Technology of Polymers, CNR, Catania, Italy

Philippa Mills

Affiliation Clinical & Molecular Genetics Unit, Institute of Child Health, University College and Great Ormond Street Hospital for Children NHS Trust, London, United Kingdom

Peter Clayton

Affiliation Clinical & Molecular Genetics Unit, Institute of Child Health, University College and Great Ormond Street Hospital for Children NHS Trust, London, United Kingdom

Carla G. Asteggiano

Affiliation Centro de Estudio Metabalopatías Congénitas, Faculdad de Ciencias Médicas, Universidad Nacional de Córdoba, Hospital de Niños de la Santísima Trinidad, Córdoba, Argentina

Dulce Quelhas

Affiliation Unidade de Genética Médica, Departamento de Genética Humana, Centro de Genética Médica - Dr. Jacinto Magalhães - INSA, IP. Porto, Portugal

Ali Cansu

Affiliation Gazi University Faculty of Medicine, Department of Paediatric Neurology, Besevler/Ankara, Turkey

Esmeralda Martins

Affiliation Unidade de Doenças Metabólicas, Hospital de Crianças Maria Pia, Porto, Portugal

Marie-Cécile Nassogne

Affiliation Université Catholique de Louvain, Cliniques Universitaires Saint-Luc, Brussels, Belgium

Miguel Gonçalves-Rocha

Affiliation Unidade de Genética Médica, Departamento de Genética Humana, Centro de Genética Médica - Dr. Jacinto Magalhães - INSA, IP. Porto, Portugal

Haluk Topaloglu

Affiliation Department of Child Neurology, Hacettepe University Children's Hospital, Ankara, Turkey

Jaak Jaeken

Affiliation Center for Metabolic Diseases, University Hospital Gasthuisberg, Leuven, Belgium

François Foulquier

Affiliation Structural and Functional Glycobiology Unit, UMR CNRS/USTL 8576, IFR 147, University of Lille 1, Villeneuve d'Ascq, France

Gert Matthijs

gert.matthijs@med.kuleuven.be

Affiliation Center for Human Genetics, University of Leuven, Leuven, Belgium

Competing Interests

The authors have declared that no competing interests exist.

Author Contributions

Conceived and designed the experiments: DR RP MBM FF. Performed the experiments: DR RP MBM FF. Analyzed the data: DR RP MBM FF. Contributed reagents/materials/analysis tools: CGA. Wrote the paper: DR RP JJ FF GM. Carried out the glycans analysis and the interpretation of the results: LS DG PM PC. Involved in the clinical evaluation and the follow-up of the patients: DQ AC EM MCN MGR HT. Carried out the molecular genetic studies and the interpretation of the results: DR VR GM. Collected and compared clinical data: DR JJ.